So what is MND, anyway? Guide for young people affected by MND

We'd love to hear what you think about our guide for young people aged up to and including 18: So what is MND, anyway?

Our hope is that the guide can answer your questions and help you open conversations about MND with your family and those close to you. It has been designed with the help of young people affected by a diagnosis of MND in their own family. All the quotes and anecdotes have been shared by them to give you support.

There are 7 short questions in this survey. It should only take about 5-10 minutes to complete.

Please be aware that your answers may be used as anonymous quotes to help us raise awareness of MND, and the needs of young people and young carers affected by the disease, in our information, campaigning for services or to seek funding.

Thank you so much for your support, as your feedback will let us know what we're doing well and help us continue improving this resource.

1. Which of the following describes you best?

I am living with MND
I am a young person or young carer
I am close to someone with MND
I am a carer for someone with MND
I am a health and social care professional
Other (please give details):

2. Do you think the information is clear and at the right level for young people?

Ideal
Okay
Quite difficult
Very difficult

3. Is it easy to find the section you need?

Ideal
Okay
Quite difficult
Very difficult

4. Did you find the information useful?

Very useful
Quite useful
Of no use

5. Do you feel this information will help young people affected by MND with any of the following? (Tick all that apply)

awareness that no-one is to blame for MND or its effects
more awareness about what to expect as the disease progresses
more ideas on how to help the person with MND
ways to get support as a young person affected by MND
awareness of how to collect good memories with the person who has MND