End of life - a guide for people with motor neurone disease

1. We welcome your views on our End of life guide

Our publication End of life - a guide for people with motor neurone disease, provides a comprehensive overview about planning for future care and decision making. We'd be grateful to know what you think works well in the guide and what could improve to help people with or affected by MND.

Complete the short questionnaire below and respond to all the questions if you can. Please ensure these views are your own and thank you for your valuable assistance.

Please be aware that your comments may be used as anonymous quotes to support our work, or raise awareness through campaigning or fundraising bids. This can really help to improve understanding and make a difference for all those affected by the condition.

If you need support or wish to contact us at the MND Association, email our MND Connect helpline on: mndconnect@mndassociation.org or call 0808 802 6262

1. Which of the following best describes you?

I'm living with MND or Kennedy's disease
I'm close to someone with MND or Kennedy's disease
I'm a carer for someone with MND or Kennedy's disease
I'm a health or social care professional supporting people with MND or Kennedy's disease
I'm an employee or volunteer for the MND Association
Other (please specify):

2. Please select from the following options for each question:

	Simple	Quite easy	Complex	Very difficult
Is the information clear and easy to read?	Is the information clear and easy to read? Simple	Is the information clear and easy to read? Quite easy	Is the information clear and easy to read? Complex	Is the information clear and easy to read? Very difficult
Is it easy to find your way around the content?	Is it easy to find your way around the content? Simple	Is it easy to find your way around the content? Quite easy	Is it easy to find your way around the content? Complex	Is it easy to find your way around the content? Very difficult
Is the item easy to physically handle?	Is the item easy to physically handle? Simple	Is the item easy to physically handle? Quite easy	Is the item easy to physically handle? Complex	Is the item easy to physically handle? Very difficult

3. Did you find the information useful?

4. Which of the following do you feel this guide will help to provide for you (or the person you are caring for)? (select all that apply)

an opportunity to find out facts and help reduce fear about end of life with MND
a greater awareness of how to plan future care as the person with MND would wish
more confidence about discussing end of life with professionals
more confidence about discussing end of life with family and friends
an improved quality of life during end of life care, through being more informed

5. Is there any aspect you would like covered in more detail?

6. Can you describe how this resource has helped you? (For example, in accessing support or making informed decisions.)

7. Do you have any other comments or suggestions?

Thank you for your assistance.

If you would like further guidance and support, please contact our MND Connect Helpline:
Telephone: 0808 802 6262
Email: mndconnect@mndassociation.org