Emotional and psychological support for people with or affected by MND

1. We welcome your views on our booklet: Emotional and psychological support for people with or affected by MND.

Emotional and psychological support provides guidance for people with MND and their carers. This overview is designed to help you open conversations with health and social care professionals about the types of support available. Your professionals can then support your individual needs and circumstances.

We'd really like to know what you think works well and what could improve. Please respond to all the following questions if you can.

Your comments may be used as anonymous quotes to support our work, or raise awareness through campaigning or fundraising bids. This can really help to improve understanding and make a difference for all those affected by the condition.

If you need support or wish to contact us at the MND Association, email MND Connect on: mndconnect@mndassociation.org or call 0808 802 6262

Thank you for your help.

1. Which of the following best describes you?

I'm living with MND or Kennedy's disease
I'm close to someone with MND or Kennedy's disease
I'm a carer for someone with MND or Kennedy's disease
I'm a health or social care professional supporting people with MND or Kennedy's disease
I'm an employee or volunteer for the MND Association
Other (please specify):

2. Please select from the following options for each question:

	Easy and clear	Quite easy	A bit difficult	Very difficult	I'm not sure
Is the content clear and easy to read?	Is the content clear and easy to read? Easy and clear	Is the content clear and easy to read? Quite easy	Is the content clear and easy to read? A bit difficult	Is the content clear and easy to read? Very difficult	Is the content clear and easy to read? I'm not sure
Is it easy to find your way around the content?	Is it easy to find your way around the content? Easy and clear	Is it easy to find your way around the content? Quite easy	Is it easy to find your way around the content? A bit difficult	Is it easy to find your way around the content? Very difficult	Is it easy to find your way around the content? I'm not sure
Is the item easy to physically handle?	Is the item easy to physically handle? Easy and clear	Is the item easy to physically handle? Quite easy	Is the item easy to physically handle? A bit difficult	Is the item easy to physically handle? Very difficult	Is the item easy to physically handle? I'm not sure

Do you have any comments on wording or the way the guide is presented?

3. Which of the following do you feel this guide will help to provide? (select all that apply)

more awareness of the mixed emotions likely to happen with MND or when providing care support
more confidence in being open about how I'm feeling with my loved ones
more confidence about seeking emotional or psychological support from professionals
improved quality of life through guidance on how to raise awareness of my needs with MND

4. Did you find the information useful?

Can you describe how this resource has helped you as an individual? (For example, in raising awareness of your needs or feeling more able to seek emotional support.)

5. Do you have any suggestions to improve the guide?

Thank you for your assistance.

If you would like further guidance and support, please contact our MND Connect Helpline:
Telephone: 0808 802 6262
Email: mndconnect@mndassociation.org