Patient & Public Research Participation Register

1.

REGISTERING YOUR INTEREST WITH US TO BE INVOLVED OR PARTICIPATE IN RESEARCH

Before you sign up to our patient and public involvement (PPI) and patient participation register it is important that you understand the differences between PPI involvement and patient participation in research. 

PATIENT AND PUBLIC INVOLVEMENT

Involvement in research is completely different to participating in a research study.  When patients or public are involved in research they work alongside the researcher / research team to help shape what exactly it is that needs researching, how research is carried out, help run the study and how the results are shared and applied in practice.  You can be involved in the whole process or just one part. 

PARTICIPATION IN RESEARCH

Participating in research means you are the person taking part in the study eg. attending a focus group, completing a questionnaire or taking a new drug in a clinical trial. 

HOW YOUR DATA WILL BE USED

The register will be held by BAD UK and compliant with General Data Protection Regulation (GDPR).  We will never share your details with anyone, we will use the information you provide to contact you about opportunities we have become aware of that match an interest you have selected. 

All opportunities we share with you will have been subject to appropriate checks to ensure legitimacy of the person or organisation requesting involvement or participation. BAD UK will be unable to advise you on whether or not you should become involved or participate, you will need to consider each opportunity carefully to ensure involvement or participation is the right thing for you.

DISCLAIMER

By participating in this survey you are consenting to BAD UK holding the information you provide and contacting you when a research study matches your interest. Do you consent?