Making the most of life

1. We welcome your views on our booklet, Making the most of life with MND.

Our booklet, Making the most of life with MND contains suggestions of ways to carry on taking part in hobbies and interests with MND or Kennedy's disease.

We'd really like to know what you think works well and what could improve. Please respond to all the following questions if you can.

Your comments may be used as anonymous quotes to support our work, or raise awareness through campaigning or fundraising bids. This can really help to improve understanding and make a difference for all those affected by the condition.

If you need support or wish to contact us at the MND Association, email MND Connect on: mndconnect@mndassociation.org or call 0808 802 6262

Thank you for your help.

1. Which of the following best describes you?

I'm living with MND or Kennedy's disease
I'm close to someone with MND or Kennedy's disease
I'm a carer for someone with MND or Kennedy's disease
I'm a health or social care professional supporting people with MND or Kennedy's disease
Other (please specify):

2. Please select from the following options for each question:

	Easy and clear	Quite easy	A bit difficult	Very difficult	I'm not sure
Is the content clear and easy to read?	Is the content clear and easy to read? Easy and clear	Is the content clear and easy to read? Quite easy	Is the content clear and easy to read? A bit difficult	Is the content clear and easy to read? Very difficult	Is the content clear and easy to read? I'm not sure
Is it easy to find your way around the content?	Is it easy to find your way around the content? Easy and clear	Is it easy to find your way around the content? Quite easy	Is it easy to find your way around the content? A bit difficult	Is it easy to find your way around the content? Very difficult	Is it easy to find your way around the content? I'm not sure
Is the item easy to physically handle?	Is the item easy to physically handle? Easy and clear	Is the item easy to physically handle? Quite easy	Is the item easy to physically handle? A bit difficult	Is the item easy to physically handle? Very difficult	Is the item easy to physically handle? I'm not sure

3. Do you feel this information will help to provide people living with MND or Kennedy's disease with any of the following? (select all that apply)

Awareness of the impact MND or Kennedy's disease can have on wellbeing, hobbies and interests
Greater understanding of how adaptations can help a person with MND or Kennedy's disease maintain hobbies, interests or activities they enjoy
Greater awareness of the organisations and professionals that can provide support
An improved quality of life through knowing how to access support that can help them continue doing the things they enjoy

4. Did you find the information useful?

Can you describe how this resource has helped you as an individual? (For example, by helping you find new ways to carry on with hobbies or interests that you enjoy?)

5. Do you have any suggestions to improve the guide?

Thank you for your assistance.

If you would like further guidance and support, please contact our MND Connect Helpline:
Telephone: 0808 802 6262
Email: mndconnect@mndassociation.org